I am sorry to hear you too have felt this symptom. It is terrifying!
What I can tell you is this.
Definitely when one is in pain, allergic reaction, visible injury or anything is wrong in the human condition it is natural for somerone’s blood pressure to go up and down a bit.
However, it is against logic that it simply go up in large degrees with no potential cause, defying rhyme and reason. Also not exactly adhering to the science of blood pressure controls like medications to bring it down or keep in check. It is willy nilly like.
Pheo/Para is considered rare because of the number of living diagnoses, BUT apparently not so rare when one undergoes an autopsy.
I found much written about folks that were diagnosed with many typical issues of aging and when they passed (most often untimely) their autopsies revealed what is called “unsuspected” Pheo or Para growth in/on adrenal glands.
So cause of death may state, due to cardiac arrest, but will also state, aggravated by unsuspected Paraganglioma/Pheochromocytoma. Indicating that lead to cause of death, but simply was not known in their life time.
I did not like the numbers I saw there.
I also saw where Para/Pheo can cause some 100 different symptoms. Yes, !!! It is ripe for misdiagnosis, and so often is according to aforementioned numbers and medical opinions.
I encourage you, if for any reason you are experiencing the blood pressure symptoms (as they are the dead Give away to the problem) ask for those very specific blood and urine tests, plus imaging. It is such a small effort to get back information that you can work with, if not put that concern to rest. It is curable, but left untreated it is fatal. It’s just a question of where and when.
Be your own advocate, make you medical worries your doctors worries by haunting them until you get an answer. Go in with a request for exactly what you want from them. Most providers seem to like a simple referral for your request. Just knowing what to ask for is the biggest part of the puzzle.
My thoughts and best wishes are with you.
I love this!